Network membership

Italiano/Italian

Network Organisation

Network Board

Decision-making body composed of the Coordinator and the Biobank Directors (cfr. The Charter, point 2.1)

Network Board members:

• Coordinator and Biobank Director: Luca Sangiorgi
• Biobank Directors: Chiara Baldo, Luca Magistrelli, Alessandra Renieri, Elena Pegoraro, Stefania Corti, Sara Gibertini, Eleonora Lamantea

Access Committee

Sample request evaluation body. The Committee coincides with the Network Board (cfr. The Charter, point 2.1)

Access Committee members:

• Chiara Baldo, Luca Magistrelli, Alessandra Renieri, Elena Pegoraro, Stefania Corti, Sara Gibertini, Eleonora Lamantea and Luca Sangiorgi

Advisory Board

Consultative body composed of experts in legal, ethical and technical matters (cfr. The Charter, point 2.7)

Advisory Board members:

• Simona Borroni, Gruppo Famiglie Dravet Associazione Onlus
• Georges Dagher, French Institute of Health and Medical Research (Inserm)
• Deborah Mascalzoni, European Academy of Bozen/Bolzano - EURAC
• Maurizio Scarpa, Centro di Coordinamento Regionale Malattie Rare, Azienda Sanitaria Universitaria Integrata di Udine
• Erik Steinfelder,Thermo Fisher Scientific

Coordination office

• Lorena Casareto, Operations Manager

Current members

• Biobank of the Laboratory of Human Genetics
  Director: Chiara Baldo
  U.O.C. Laboratorio di Genetica Umana, IRCCS Istituto Giannina Gaslini, Genova
• Parkinson Institute Biobank
  Director: Luca Magistrelli
  Centro Specialistico Ortopedico Traumatologico G.Pini -CTO, Milano
• Cell lines and DNA bank of Rett syndrome, X-linked mental retardation and other genetic diseases
  Director: Alessandra Renieri
  Medical Genetics, University of Siena; Genetica Medica, Azienda Ospedaliera Universitaria Senese, Siena
• Neuromuscular Bank of Tissues and DNA samples
  Director: Elena Pegoraro
  Azienda Ospedale Università Padova
• Bank of muscle tissue, peripheral nerve, DNA and cell culture
  Director: Stefania Corti
  U.O.D. Malattie Neuromuscolari e Rare, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Centro Dino Ferrari, Università Studi Milano, Milano
• Neuromuscular Disease Biobank
  Director: Sara Gibertini
  SC Neurologia 4 - Neuroimmunologia e Malattie Neuromuscolari, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milano
• Cell line and DNA Bank of Genetic Movement Disorders and Mitochondrial Disesases
  Director: Eleonora Lamantea
  SC Genetica Medica e Neurogenetica Fondazione IRCCS Istituto Neurologico Carlo Besta, Milano
• BIOGEN -Biobank of Genetic Samples-
  Director: Luca Sangiorgi
  S.C. Malattie rare Scheletriche, Istituto Ortopedico Rizzoli, Bologna