Network contacts
- General information:
- biobanknetwork@telethon.it
- Request support:
- support@biobanknetwork.org
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USEFUL LINKS
Telethon Foundation
Official Website of Telethon Italy
Telethonitalia
Official YouTube Channel of Telethon Italy
Fondazione del Monte di Bologna e Ravenna
Official Website of Fondazione del Monte di Bologna e Ravenna which supported the Biobank of Genetic Samples
EBB (EuroBioBank)
European network of biobanks conducting research on rare diseases. TNGB-partners are also partners of EBB network
RD-Connect
An integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. TNGB is an associated partner
BBMRI-ERIC (Biobanking and Biomolecular Resources Research Infrastructure)
BBMRI is a pan-European and internationally broadly accessible research infrastructure and a network of existing and de novo biobanks and biomolecular resources. TNGB is an operative partner (Associated Organisation)
BBMRI.it
Italian national node of BBMRI. All TNGB-partners have been admitted in BBMRI.it
BRIF (Bioresource Research Impact Factor)
Part of the BBMRI-project, BRIF is a working group who has as main objective to promote the sharing of bioresources by creating an impact factor for them
SIGU - Società Italiana Genetica Umana
Official Website of the Italian Society of Human Genetics
Garante per la protezione dei dati personali
Official Website of the Italian Data Protection Authority