Documents
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Network policies and forms
The Network Charter - The Network Charter (pdf format)
- Standard Operating Procedures (pdf format)
- Material Transfer Agreement (pdf format)
- Information leaflet and consent form (pdf format)
- Agreement model between a rare disease Biobank and a Patient Organisation
- User Guide for sample access
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Guidelines
Genetic Biobank Guidelines (English version) - Genetic Biobank Guidelines, Analysis N. 5/6.2003 (Italian version)
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Publications
Filocamo et al. Orphanet J Rare Dis. 2013 Aug 30;8:129 - Baldo et al. Orphanet J Rare Dis. 2016 Oct 24;11(1):142
- Leaflet for general public in Italian (printed in February 2017)
- List of publications acknowledging the TNGB (updated on 30th September 2016)
- List of publications reporting the TNGB experience
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Agreements
GGB (TNGB Partner 1) and Ring 14 International - GGDB (TNGB Partner 7) and Federazione Italiana Prader Willi
- GGB (TNGB Partner 1) and Associazione Italiana Mowat Wilson
- GGB (TNGB PArtner 1) and Associazione Nonsolo15
- GGB (TNGB Partner 1) and Gruppo Famiglie Dravet
- biobankUNISI (TNGB Partner 3) and Associazione Italiana Rett
- biobankUNISI (TNGB Partner 3) and Associazione Sindrome di Alport
- IGG-GB (TNGB Coordiantor) and Associazione Italiana Sindrome di Poland
- biobankUNISI (TNGB Partner 3) and Associazione ILA
- IGG-GB (TNGB Coordinator) and LND Famiglie Italiane
- IGG-GB (TNGB Coordinator) and F.O.P. Italia onlus
- GMD-MDbank (TNGB Partner 9) and AISNAF onlus
- GGB (TNGB Partner 1) and ASSI Gulliver
- GGDB (TNGB Partner 7) and AISK Associazione Italiana Sindrome Kabuki
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Posters
Europe Biobank Week Congres (yr 2016) - English - Europe Biobank Week (yr 2016) - English (presentation)